So many of u know i recently had a little baby girl 9/28/08 at 2:04pm named Kaylie Ann Fuller. . .she was early n not due till 10/19/08. . .so she was a 5 lb 10 1/2 oz preemie. We were discharged from OSF St Francis on Wednesday 10/01 n kaylie weighed 5 lb 4 oz n its normal to lose some weight the first few days but she started turning yellow n havin to be monitored every day 4 high levels of bilirubin/jaundice that poison the brain n central nervous system if 2 high. Her levels decreased after a week so we didnt worry abt her health anymore. Yet monday we had a doctors apptmt n she had gone from a normal 7 to a high 26.7 so we were rushed to OSF pediatrics ward for phototherapy that usually gets rid of the bili in infants kaylies age. Wrong. The doctors cant get the levels to stabilize yet but they did rule out liver disease.
So today friday 10/17 6pm she had a blood transfusion due to abnormally low hemoglobin levels n her red blood cells r splittin for waste sooner than her body can replenish them. It's a bandaid job till we can find the real issue & get it solved. It helps her stabilize & prevent her blood pressure & temperature from rising/increasing.
Well its 5:30am eleven hours after the transfusion n still no side effects or bad reaction which is great. But it's just a temp bandaid to help her till they can discover whats causing her to have such short blood cell life n anemia. Thank god for doctors n technology these days. I've been in this hospital way too long. . .we just want to go hme n be with daddy. Please continue praying 4 us n the doctors that they can swiftly n effectively find a cure n pray that the damage isn't already done.
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