So it's Sunday and we had a great day at church fellowshipping & worshipping with our church family again. God truly does answer prayer. Things were looking up & Kaylie just seemed to be getting better with each doctor visit, each passing day. We had been monitoring her very closely for any unusual symptoms due to any cause of a hemoglobin drop or any other health concerns from Doctor Kim. Unfortunately the third blood test for Osmolitic Frigility in her red blood cells has not come back yet.
Kaylie started acting unusual on Friday & has barely been able to keep any of her food down. She's not sleeping right & definitely not acting like her normal sweet content self. We took her into the afterhours ped clinic, yet they examined her and determined we needed to go to the Emergency Room.
So after they examined her in the ER & took more blood samples we discovered that her hemoglobin level is dropping rapidly again & now at 7.5. This means she does have to have yet another blood transfusion. We are in the PIC level of OSF where they're monitoring her overnight & morning & then the Hemotologist doctor will come in with some more hypothetical explanations for her red blood cells splitting rapidly again.
Just continue praying that this mess will all be over very soon!!!
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